We support families facing unforeseen events prior to or immediately after the birth of their newborn, be it a fatal fetal diagnosis, or brain injury during birth. As there are many thoughts and decisions during this difficult time, donation is one that is often present. IIAM’s Neonatal Donor Program supports efforts to pursue organ and tissue donation for medical research once their babies pass from natural causes shortly after birth.
Opening Minds and Opening Eyes
Beginning with a mother’s love for her unborn baby, IIAM established a Neonatal Donor Program in 2012. This program offers a needed service to the research community and to families of babies with fatal fetal diagnoses who will die from natural causes soon after birth, or where other fatal outcomes occur during or shortly after the birth. Working with a Steering Committee comprised of bioethicists, professionals in reproductive law, neonatologists, and other subject matter experts, IIAM has created donor guidelines for screening referrals of neonates and determining options for organ and tissue donation for medical research. Since its inception, IIAM’s Neonatal Donor Program has helped families choosing donation to make an important difference with research studying how organs and cells develop in ways that were once unthinkable. Today, parents who receive a non-survivable diagnosis for their baby during pregnancy have more opportunities to create a lasting legacy for their baby’s beautiful but all-too-brief life by donating his or her organs and tissue for medical research.
Neonatal Donation Update as of November 1, 2019