Neonatal Donation

IIAM celebrates 8 years of honoring neonatal donor families since our 1st neonatal donor, Amalya Nathaniel Conkel, was born on September 10, 2012. To date, IIAM has worked with 174 donor families who offered 683 donor gifts for medical research!

“We’re so grateful to IIAM for energizing neonatal donation for research. Because of their collaboration with OPOs across the country, parents now have the opportunity to turn despair into gifts of life.”  READ more testimonials below.

Opening Minds and Opening Eyes

We support families facing unforeseen events prior to or immediately after the birth of their newborn, be it a fatal fetal diagnosis, or brain injury during birth. As there are many thoughts and decisions during this difficult time, donation is one that is often present. IIAM’s Neonatal Donor Program supports efforts to pursue organ and tissue donation for medical research once their babies pass from natural causes shortly after birth.

Beginning with a mother’s love for her unborn baby, IIAM established a Neonatal Donor Program in 2012. This program offers a needed service to the research community and to families of babies with fatal fetal diagnoses who will die from natural causes soon after birth, or where other fatal outcomes occur during or shortly after the birth. Working with a Steering Committee comprised of bioethicists, professionals in reproductive law, neonatologists, and other subject matter experts, IIAM has created donor guidelines for screening referrals of neonates and determining options for organ and tissue donation for medical research. Since its inception, IIAM’s Neonatal Donor Program has helped families choosing donation to make an important difference with research studying how organs and cells develop in ways that were once unthinkable. Today, parents who receive a non-survivable diagnosis for their baby during pregnancy have more opportunities to create a lasting legacy for their baby’s beautiful but all-too-brief life by donating his or her organs and tissue for medical research.

Updates on Neonatal Donation

Neonatal Donations as of July 1, 2022

Carrying to Term Interview

Driven by one family’s determination for a positive outcome after receiving a terminal diagnosis of their prenatal baby, IIAM sought to help and, in the process, established its Neonatal Donation Program.

Neonatal Donation Testimonials

Click on the circles below to view the different testimonials.

Share Your Baby's Legacy...

We would love to hear about your baby’s precious gift to medical research, impacting countless lives. Please consider sharing your story as part of your baby’s beautiful legacy.

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