Neonatal Resources

Helpful internet resources and printable materials

Internet Resources

A comprehensive list of internet resources to help you navigate this difficult time.

Alexandra’s House

Resources; in-person support; 3D ultrasounds; care packages; support groups for perinatal hospice, pregnancy and infant loss families in Missouri

Be Not Afraid

Catholic based online support and information for families continuing a pregnancy to term after an adverse diagnosis

Carrying To Term

Resources and information to help families continuing a pregnancy after a terminal diagnosis, and educational support to medical professionals

The Haven Network

Resources; in-person support and photography for pregnancy and infant loss families in Illinois

HEALing Embrace

Information; care packages, in-person support and photography in Nebraska; monetary support for funeral and medical expenses for pregnancy and infant loss families

Molly Bears

Weighted memorial bears made the same weight as your baby for pregnancy and infant loss families

Mommies Enduring Neonatal Death M.E.N.D

In-person support in Texas; online support for families after the loss of a baby

National Birth Defect Registry

National registry for birth defects to help with research and finding causes and cures for various birth defects; can participate even after your loss.

Now I Lay Me Down to Sleep

Free photography for pregnancy and infant loss families; photographers throughout the United States

Perinatal Hospice Website

Clearinghouse of information and resources for perinatal hospice and palliative care

Perinatal Partners for Life

Information and care packages for families continuing to term after an adverse diagnosis

Poor Prenatal Diagnosis

Information hub for various poor and terminal diagnoses in pregnancy

Purposeful Gift

Information about neonatal organ, eye, tissue, and whole body donation; phone and e-mail support; printed materials

Share Pregnancy and Infant Loss Support

Resources; online and phone support; in-person support in 29 states; resource packets for pregnancy and infant loss families

Still Standing

Resources and articles surrounding topics of grief and loss, specifically for pregnancy and infant loss families

String of Pearls

Information; care packages; in-person support in Colorado; after care for families who have received a terminal diagnosis

Sufficient Grace Ministries

Information; care packages; free online birth plan; online support; in-person, photography, and after care for pregnancy and infant loss families in Ohio

Sweet Grace Ministries

Information; local care packages, in-person support, photography, and after care for pregnancy and infant loss families in Pennsylvania

Trappist Caskets

Free caskets and urns for pregnancy and infant loss families

Anencephaly Resources

These websites were designed for families carrying babies diagnosed with anencephaly. Both have extensive information, stories, and in-depth resources including birth plans, memory making ideas, grief counseling info and much more.

anencephaly.net/

Anencephaly Net was created by Steve and Patricia Karg in loving memory of their daughter, Mary Elizabeth.

Anencephaly Angels Facebook Group

Private Facebook group for any family who has received the diagnosis of anencephaly, regardless of their choice to continue or end the pregnancy

Anencephaly Hope Facebook Page

Facebook group to support families who have received the diagnosis of anencephaly; free custom care packages and hats for currently pregnant families; keepsakes for purchase for grieving families

Anencephaly Info

Most comprehensive resource regarding anencephaly, available in multiple languages. Includes facts, stories, photos and detailed information

Anencephaly.Info Facebook Group

Private Facebook group for families who are continuing a pregnancy after the diagnosis of anencephaly

Reference Material

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